THE JED STARS

We lost our gorgeous son Jed to High Grade Glioma in April 2023.  Jed was just 12 years old when he was taken from us.  He was diagnosed just a short 17months prior. He endured 43 sessions of radiation, countless chemo rounds, 2 brain surgeries and sadly ended up in a wheel chair.  He had his whole life ahead of him and was stripped of it in the blink of an eye.  

Jed was dropped off at school on November 18th 2022, he was so excited to be attending a slumber party at a mates place straight after school.  2 hours later I was called from the school sick bay telling me Jed was unwell and I needed to come immediately.  His arm wouldn’t stop pulsating and it was like he had been drugged.  We made the very quick decision to rush him to Noosa Emergency.  He suffered a major seizure just minutes after we arrived and was placed on a ventilator.  It was terrifying as a parent to watch.  He was our gorgeous, happy, excited, sporty 11 year old just hours earlier.  We could not believe what was un-folding before our eyes.  Jed was air lifted to Brisbane Children’s hospital and we were told he had a bleeding brain tumour all in a matter of hours.  We then had to explain to our beautiful son that he had brain cancer, which is no conversation a parent should ever have to have with their child.  Our lives have never been and never will be the same from that point.  It is our hope that no family or child will ever have to endure what we have.

SO we are putting on the runners for Connor’s Run to support the brave and awesome kids fighting brain cancer - the #1 disease killer of young people, and to fund the science that will one day end paediatric brain cancer. 

Brain cancer research is on the tipping point. We can all be part of making important breakthroughs happen. My participation is something that I can do to support the science and in the meantime the patients. For all the people out there currently battling brain tumours and for those who couldn’t wait for research to progress any longer.

I'm doing this because we know we can find a way to make brain cancer go the way of the dinosaurs. Make a donation to my page and be part of making brains matter, together we can change the odds for young people. We love you and miss you every day Jeddy, this one is for you!